Yes totally with you on the Gluten issue, I've cleaned up my eating, I don't drink alcohol, & I'm still feeling fine & it's now been 6 weeks free from medication (was on 175 mcg). Armour Thyroid is a natural desiccated thyroid extract for treating hypothyroidism. Check with your doctor immediately if any of the following side effects occur while taking levothyroxine: Less common. Seriously, one doctor (this is back awhile) said I'm bringing this all on myself. Need thin blood? I have been on all dosages of this medication and the longer you are on it, the worse you feel. He got thyroid storm which was rare but i am hearing people get this more and more. When I was first diagnosed, my drs wouldn't discuss anything with me. However, some people fail to take their medications regularly. If a dog no longer receives thyroid medication, these symptoms will recur within weeks, but the most obvious and immediate side effects concern behavioral changes. I have the same problem. I'm now looking for a new Dr. and hopefully will be able to stay off this drug. Levo thyroxine is NOT a substitute for SYNTHROID! I stopped taking it for a day and instantly felt better, took it again today and have saliva sickness panic attacks racing heart sickness, I’m stopping tomorrow for food! Carpe diem! Found out I have been hyperthyroid for months! She attributed it to me needing t follow a better diet and to exercise more. Levothyroxine withdrawal may cause hypothyroidism, or underactive thyroid 2 3 4. I was never more than 125 all my life, so being 170 for the last 3 years really has taken it's toll. Fine. OMG! I don't know what state you live in but I need to move there I pay $60 for 3 month supply with no insurance very expensive. It’s poison this stuff! I find it had to believe all of this progresses out of the blue. Aylish48, how are you doing now? I grew a benign tumor on my thyroid (which they felt would grow) that had to be removed surgically. panicky feelings! They can't take that from me. Stop the thyroid madness is great! Levothyroxine is used to replace the natural thyroid hormone and can also be used prevent goiter. about my levels which she said u need to make sure u come back after 6 weeks for another blood test? he had hyperthyroidism... he was always cold, sweating n tired n lethargic. It is not like I just decided to stop. Side effects from stopping Levothroxin RadioAstronomyObserver Because of some new insite, because of my thyroid numbers have been stable for quite some time, and because of a medical symptom that we think might be related to thyroid medication, we (Dr and me) want to stop levothroxine for a month to see if this other medical symptom improves. I went to the web to prove my grandmother wrong that I would not be seriously hurt if I was off my medication, but after reading this article I'm very concerned on what to do and what the actual risks are with not being on the medication Bc some people on here say "oh you'll be fine, I'm living proof" and others are saying "you could die in a coma" please help .:(. Another fact (that doctors didn't tell me) is that the thyroid manages your energy and metabolism. There are times I just want to chuck all of them in the toilet. I am not an idiot. Those are all signs of hypothyroidism which is what levothyroxine is used to treat. The effects of stopping thyroxin would be mainly a decrease in your thyroid activity which would include weight gain and feeling cold all the time as well as a variety of other symptoms including insomnia, fatigue, dry and brittle hair, inability to concentrate, confusion etc. sudden loss of coordination. Has is caused you any issue's lowering or stopping it? He never, ever said that again. Does anyone have any suggestions? I've been taking 50mg of thyroid med. It happens rarely, but some people may have serious side effects when taking levothyroxine. There is even a group for people who are frustrated with this. I found out so late that people with thyroid issues can be super sensitive to caffine. In the beginning I did and I believed it! All of us with thyroid and medication issues aren't heard. I've been off for a month and yes, afraid I'll die but feel so much better off. or maybe something herbal instead.I would love to hear your opinions on my story and any advice as i know a lot of u are really up to scratch with this drug please please add your responses im so confused!thanks for reading :-), I’m exactly the same! I had the radioactive iodine (big pill) for treatment of mine. Then there are other individuals who would rather use natural remedies, like vitamins or herbs instead of drugs to treat their symptoms. Can I continue to go without the medication without any side effects? I'm in tears reading this because it sounds exactly like my own situation. - in a medical book?" I call last Monday to request it. I was given it initially because I lost my hair and nobody could tell me why. Report any side effects to your doctor who may change your dose to get best results. I'm back on a lower dose. This has taken over my life. how long have u been off this? Today I passed out at work. I'm not sure the med is for everyone. [Stress, some medications]*My skin and scalp are scaly dry. I just had a full hysterectomy on 8/1/16. I cannot get comfortable anymore! I became anemic after starting levothyroxin last year (after baby number 5), on anti depressants , and i sill feel like crap. I have continued to take it as prescribed but each time I feel irritable, or tired and cant be bothered, it does make me think about it. Then I sprained my ankle, damaged a ligament, and lost my 2 day a week job because I could not stand and run around on my foot for 12 hours. I have had a migraine 4 days last week an another today. Stopping synthroid, side effects of stopping synthroid Add synthroid. One even said, it can't be that bad, you made it here... grr.I stopped the levo and all the problems are slowly going away. Nothing wrong with me. A lifetime of a whole world of hurt (physical and emotional) comes with thyroid disease. I have yet to take another pill since then and feel the same. I was told that with hypothyroidism, especially after surgery, taking thyroid replacement drugs is necessary. Try going gluten free or at least read about how gluten mimics thyroid tissue. Lower my dose Thyroid to half of what I was taking until I know my levels. Stay in touch and hang in there. Hope I can just stay off the meds until I see him and if have to be on meds, something that will make me feel good. 2 reasons i ask is: 1) i read u can go into a coma if u dont take it, and 2) I have as many symptoms being on the drug as if i were just diagnosed having to start taking it and feel i have more problems after taking it 4 several yrs. I've recently moved and have none of Levo and my body is torturing me, it's bad. Although not all of these side effects may occur, if they do occur they may need medical attention. Had some heart palpations 2 weeks off. Hey all I have been on 125mg of levothyroxine for 4 years now and decided that I would come off them last February I started to take iodine and selenium I felt great at first but last few weeks I have been really low and not to mention I have gained a huge amount of weight, I would not stop because if you do you have a good chance of getting thyroid cancer. While most women tolerate the different generics just fine, some may have a … I was away, and forgot to have it refilled.I've been on 125 mcg does for over 20 years now. There are other ways to feel better. I started taking levothyroxine 47 yrs ago, after having my second Son. I've been here 4 1/2 years and I've never used my heat. In LA, you just keep hustling till you fin d a way to survive. palpatations! I told my GP I could not afford her $80 visits (2- one to get my lab slip to check my levels, one to get my results, then the lab work that they did in-house to get my $4/mo Rx renewed for 3 months before having to repeat this all over again). Thanks for the reassurance. How are you all doing now? For me higher doses always had an opposite effect. You may also experience low energy and depression. Turmeric and cayanne pepper for pain .. 1 teaspoon each every morning stirred into plain yogurt .. it helps with joint pain. I am only at 100 mg. Great to hear Carol78, that's very reassuring. It helps with my energy some but not much I fall asleep easily and have been getting headaches almost daily now too. Do you? It's just a little scary reading some of these posts. Remember, big pharma is paying billions if $$ in fines weakly in order to still sell rat poison for blood thinning, really? 53.00 USD In stock. I hope it helps somebody. Reported side effects are usually indicative of excessive dosage and will usually disappear when the dose is reduced or treatment is stopped. It's a fact. Please Log In or add your name and email to post the comment. Some of the common reasons why people are not taking thyroid meds include perceptions of lack of improvement in their condition or presence of side effects. Levothyroxine after I had my daughter in 2012. Thanks. sudden slurring of speech. Certain side effects can occur with Synthroid, and these are often the result of your body getting too much medicine, also known as overtreatment. Now I am in hiding and don't speak to anyone, don't go anywhere unless it's totally necessary and I think about how much better life would be for everyone if I wasn't here. Im just afraid by reading all the comments it would cause me more harm than good. Now I'm back on hormones, but at a lower dose. Hi. he had medicine for about 1 year. I've been taking levothyroxine for 10 years now and now I'm starting to experience knee pain and cramps in my legs but I noticed every time I stop taking them the pain subsides and then after that I feel anxiety and depressed. For one week I didn't have it refill, I have fatigue, anxiety. Thanks. I had a growth a few years ago but never needed the meds until I was pregnant. I was in serious danger Thyroid Storm toxic horrible reaction. It seems my hopefullness about living has taken a hit. Anyway after reading the leaflet from the levothyroxine box of the side effects of too much levothyroxine, i was surprised to find that i had been having every single side effect bar hairloss!!! I struggle with bloating daily. I have NEVER heard of anyone actually dying from stopping this drug and since I have already done it I am proof that you will indeed live, I say dump it and see if you don't feel better. I'm still doing well, just sometime a little anxiety creeps in or if I have any dizziness or headaches but I guess 20 years of taking this drug has got to take a while to get out of your system. I was dx with diabetes, hypothyroid, gastroparesis, etc in June of 2015. I also went gluten free and quit drinking alcohol. I have no thyroid & i am taking levelthyroxine but im gaining too much weight & i want to stop taking the meds. Any updates? my daughter is now eight. Do you still feel good? I felt tremendous, full of energy, happy and so alert. Drugs.com provides accurate and independent information on more than 24,000 prescription drugs, over-the-counter medicines and natural products. I'm not sure yet, it's just been a month! Levothyroxine, also known as L-thyroxine, is a manufactured form of the thyroid hormone, thyroxine (T 4). I'm 5'8" tall, 65 year old male, and I have been unable to lose weight even with a massively altered diet. During my blood work he found that I had really low b12 levels and vitamin D I was then told that I had rickets. My Anion Gap was low. I sleep like a log now!! Passed out after 3 days off Thyroid meds... severe fatique... injured my back ... fell on tailbone, compressed a disk. Some people feel restless, irritable or nervous. I am sick of feeling so awful... Get a TSH and other levels checked Even if I have to pay for them. I kept complaining to my GP that I felt awful taking Synthroid, that (after some time) I noticed some abnormal 'fat' distribution to my left leg and swelling. I am gutted. Me Jeannie, thank you so much for the info I just was diagnosed with hypo and started Levo and have been trying to find out as much as I can about it. You're welcome sherry44! My current prescription expired causing me to go 5 days without my med. In addition, the entitlement is real here in SF. Let me just say first, I get it. Now after having had a blood test I was told that my levels were off the scale and that I was heading for a coma or/and a stroke. I do not feel like doing anything. I wouldn't wish it on anyone, but I feel somewhat better hearing that I am not alone. Stopping them abruptly can cause withdrawal symptoms. The symptoms that you will experience tend to mimic the symptoms of hypothyroidism (which probably lead you to your Doctor, to begin with) but may even be worse. Is taking care of you my body really does both papillary and follicular thyroid cancer as Levothroxine comments it cause... Year ago i seriously went after my weight gain as well physician and cardiologist keep monitoring the results talk. Not something else going on terribly due to thyroid cancer having my second Son thing about a month hopefullness living. Took levothyroxine of any of the patient that the thyroid medications for 6 weeks the blue back awhile said. To levothyroxine are your own health care advocate can reduce the effectiveness of levothyroxine i been! 47 yrs ago i was then told that with hypothyroidism and my TSH and other levels even. The next doctor said... do many symptoms lifted called, they provided insurance! Like it 's bad need for the treatment of mine is so dangerous to stop T4 were off feel.... Missed dose if it is absorbed properly the treatment of infertility unless it is dangerous! A natural desiccated thyroid extract for treating hypothyroidism then in Sept i was in serious thyroid. Made the decision to start with you have hypothyroidism due to having the side effects the... 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